|
The Focus Foundation, located in Davidsonville, Maryland, is a research agency that identifies and helps children who have X & Y Variations (also called X & Y chromosomal variations), dyslexia and/or developmental coordination disorder, conditions that lead to language-based disabilities, motor planning deficits, reading dysfunction, and attention and behavioral disorders. The Focus Foundation believes that through increased awareness, early identification and syndrome-specific treatment, children with these conditions can reach their full potential. The Focus Foundation was established in 2005 by Carole Samango-Sprouse. Dr. Samango-Sprouse is also the director of the Neurodevelopmental Diagnostic Center for Young Children, located near Annapolis, Maryland, and an associate clinical professor of pediatrics at The George Washington University in Washington, D.C. She serves as the Executive Director and Chief Science Officer of The Focus Foundation and has experience with the three disorders that are the Foundation's focus: X & Y chromosomal variations, developmental coordination disorder and dyslexia. NFC gfcvbhf The Foundation attempts to increase awareness about sex chromosome disorders in order to help children with these disorders. Although all physicians, ancillary health care providers and special educators are taught that genetic abnormalities can impact a child's development, practitioners often receive insufficient information about sex chromosome disorders, and don't often test for X & Y Variations when caring for a child who presents with developmental concerns. Early identification and syndrome-specific treatment can help these children to reach their full potential. ==Diagnosis of X & Y Variations== X & Y Variations are common but frequently undiagnosed genetic conditions that differ from the normal sex chromosome pairings of XX for females and XY for males. Due to a chromosomal mistake that produces additional X or Y chromosome to the normal complement of 46, the resulting total of 47 chromosomes (or more) may impact a child's developing central nervous system and his or her body condition. Twenty babies born each day have an X & Y Chromosomal Variation, and only five will be diagnosed in their lifetime. Twenty percent of children in school have some type of learning dysfunction, many believed to be undiagnosed children with X & Y Chromosomal Variations, and more than 500,000 people in the United States are believed to have a Sex Chromosome Anomaly. Only 5% of children with dyslexia are ever identified in their lifetime although they have symptoms presenting by 6 years of age, while most children with developmental coordination disorder are misdiagnosed with other disorders such as just speech delay, behavior problems or ADHD. The Focus Foundation works with healthcare providers and parents to properly diagnosis and find a special targeted treatment plan for the child. With the right intervention these children can perform better in school and become more confident, able and successful then they have ever been. The Focus Foundation educates and trains professionals and families throughout the country (and, sometimes abroad) so that the lives of millions of children and their families can be greatly improved. With help, all of these children can reach their full potential. The Focus Foundation consists of scientists, scholars, educators, health care providers, fundraising and marketing experts, and volunteers that work together on these issues and help change these children’s lives. Research is conducted and partnerships are made with pharmaceutical and other corporate sponsors to fund research, educate and train medical and health professionals and the community about developmental disturbances, brain-based intervention and syndrome-specific treatment. 抄文引用元・出典: フリー百科事典『 ウィキペディア（Wikipedia）』 ■ウィキペディアで「The Focus Foundation」の詳細全文を読む スポンサード リンク
|